Okay, so most of you know that three years ago our Daniel was diagnosed with what the doctors believed was Crohn's Disease. Ugh! One of the worse days of my life. They told us there was no cure. Gave us a jug of Steroids for the gut inflammation, scared us into rounds of a low grade chemo while we watch Daniel get sicker and sicker.
Long long story.... After months & months of research, trial & error, reading reading reading and networking with a multitude of others, Eight months ago through an online "Crohns Mom" friend we were introduced to a doctor in St. Louis that did not believe he could not be cured.
Today we got the best news ever. For the first time in 3 years Daniels labs are ALL NORMAL!!!!! 8 months ago he was in the 0% on the growth charts, he is now well within the 50%! 8 months ago he weighed 97# (and that was with me pumping him full of super mega shakes every day to no avail.) Today 130! AND 5'1", NOW 5'5"! But best of all, he has had 0 pain these past 8 months.
Is this trial over? I just know this. Our story is a miles long and we have learned so very much and it has taken us down roads we never knew existed. We poured out our hearts and pleaded for guidance, trusted the Lord and went to our own River Jordans so to speak. It was not in the popular, high tech, tested that we found our answers. I am grateful for modern medicine to an extent. I know there is a time and place. (Like the middle of the night ER visits when his pain was so severe that even morphine would not cut it.)
But a small part of what I have learned is that in all things we must be willing to follow the Spirit. Not be afraid to stand up when your "gut" tells you otherwise, EVEN when it goes against seemingly whole medical communities. The mode & cure will not be the same for everyone.
I am just so grateful for all we have learned, the many many prayers and the huge support from our families & close friends who listened and cried with us & who prayed for our family. Thank you.
